Another day in ITU for Chiara, she is still ventilated but looks extremely well. She has opened her eyes and is trying to extubate herself from the ventilator. I know the Doctors and Nurses are extremely anxious about this but to me it is wonderful. A couple of days ago I thought I would never see her lift her arms again, to see her her try and pull out tubes is amazing.
Neurology attended today while I was alone with Chiara which was a bit upsetting as I could tell by the conversation taking place they were looking at Chiara's condition as being serious and it was not the kind of situation I wanted to be in myself.
While intubated Chiara carefully began to unwrap the Sats probe that was around her finger, and with her tiny fingers gently pulled it off and handed it one of the Neurologists. I could tell instantly from her face that she was not expecting that. She admittedly said that they all came down with an idea what was wrong with Chiara but have clearly been proved wrong by what she has just done. Nevertheless Chiara appeared to have some problems with her muscles, joints, etc as she was extremely floppy.
I then began to ask question after question not knowing what I was looking to hear but I eventually asked the dreaded "could it be something life limiting", all I got was "well it could be serious, we don't know at this stage". I needed to sit down, or be sick or something,its that horrible feeling when the bottom has just fallen out of your world.
An MRI scan was to be arranged for the following day where they would scan her brain to check how it was functioning.
During all these conversations I also discovered that Chiara had Pneumonia.
Too much for one day, what will tomorrow hold.
It was agreed to keep Chiara intubated until after MRI.
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